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Subject: Complex Regional Pain Syndrome
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Kizac
8 posts
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| Date Posted: Feb 25, 2012
8:23 AM |
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I have CRPS in my lower left leg. It was caused by a cellulitis infection that made a huge whole in my leg. Since then I have had two stimulators put in. I was wondering if there are others out there with this disease that I could share, get ideas, and share support with. I also wonder since I had my old stimulator removed and a new one replaced, I feel like my CRPS has moved to the surgical sites of my stimulators. Has anyone had problems with CRPS traveling after a surgery? If this is the case....where do I go from here? |
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VEM
1459 posts
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| Date Posted: Feb 26, 2012
7:51 AM |
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| Kizac I can't answer that about the CRPS but would like to welcome you to the support forum. Have you looked in the subject/topic index because I do know that here are ppl that have been on here w/that condition. Love support & hugs! 'Bamavickie |
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OUCH329
7 posts
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| Date Posted: Feb 28, 2012
10:49 PM |
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| Hi Kizac,
I have CRPS in my whole left lower leg and back. I have not had a spinal stimulator yet. I go for my MRI tomorrow, then after they get the result from that I will get my trial. But as for my CRPS they have tried everything and my doctor states this is my best option because I tried all and failed. My medication is at high doses, and better yet my OPANA is on backorder so I have to have a med change next month, probably in the middle of getting my stimulator trial which will not be any fun. I would love to share ideas, and all with your. Also welcome! Talk to you soon. I hope you start feeling better and it does not spread.
Kristin |
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atinnin08
4 posts
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| Date Posted: May 29, 2012
12:26 AM |
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| Hello, my name is Adam I'm 22 years old and this all started for me when I was 16. I was walking through a Walmart store here in my hometown when it felt like I had a rock in my shoe, I took my shoe off and discovered that there was no rock there but that my foot had began to swell and turn red. I went to the ER that night and the doctor said he didn't think it was anything serious but just to keep an eye on it that it could be something viral. I went home later that night and began experiencing the same thing in the other foot, by that time I thought, man something is really wrong here! So I got up the next morning and went work and the bottom of my feet were hurting so, so bad I couldn't even hardly stand to walk on them but I managed to make it through my shift. Later that day, my parents decided to take me back to the hospital and again they said they had no clue what was going on. The next day I went to my pediatrician and by that day my feet were starting to change colors like a blue and purple color. I saw my pediatrician and he examined me and told me I needed to be seen by a neurologist in the city so he made an appointment for
Me to go to st.louis. Long story short, I spent 21 days in st. Louis children's hospital with no diagnosis. The the chief of plastic surgery comes in and says she thinks it is tarsal tunnel caused by something viral so she does surgery one at a time because she is not sure if it will work or not and it helped me tremendously! Now before I went to st.louis it got to the point where I could not walk I was in a wheelchair my feet were in so much pain and most of my feet were numb also. Then in 2008 it happened again she went into my calves and relieved the same pressure off of the nerves and it worked but every time it happend I am in a wheelchair. Then in 2010 it happens again and there is no more she can do so I was in a wheelchair for 6 months. I went to the Cleveland clinic for answers and didn't get any there so I turned to the spinal cord stimulator and it has worked so far. There is so much more to this story but I can't type it all. |
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